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Wednesday 25 April 2012

A little absent

Just wanted to explain my recent lessening of blog posts.
My son Lucas is going through a tough time at the moment. He has entered into Gonadotropin Dependent Precocious Puberty, which has meant that we have started horrible intramuscular injections. These are basically a massive dose of Gonadotropin - the hormone that starts puberty - so at the moment we have gone from a basically sweet, gentle boy just slowly having some pubertal symptoms into a 9 year old boy, developmentally and emotionally delayed in some ways in full blown puberty. He is hurting his sister, he is hurting me, he is miserable and furious most of the time, he is tired and cant concentrate, and he flips out without seemingly any pre warning, and he cant be left with his sister alone at all at the moment. His Aspergers is through the roof at the moment, and I am finding it really really difficult. I love him so very much, and I am trying to take it easy on him, reminding myself that it isn't 'him' acting like this - its hormones, and he cant help it, but when he grabs his 4 year old sister by the neck and rams her head against a door, its hard. She adores him, infact started crying and screaming at me when I told her that she really couldn't marry him when she grows up, but I am scared that she will start to become frightened of him.

I was supposed to do the Kids Clothes Week Challenge this week, but haven't sewn one thing. I am trying to be ok with that. They happen quite often, and my children have lots of clothes.

I also have cushions to sew, a bedroom to sort, work meetings, and we are awaiting results of tests to try to explain what Lucas' seizure episodes are.

So - put bluntly - I am just about getting by right now, but know that things will improve. If you fancy popping by to visit, I will post, just not with quite the ferocity that I was.

Thanks!
Love Sarah

5 comments:

  1. Sarah - Thanks for sharing your life with us in such an honest, poignant manner. I will pray for you and your family, but is there something else I can do for you? Would love to be of help. I know that the sewing beckons, even when we can't answer. Remember those projects will always be there, waiting for you. Maybe for now you should only sew the things that make you REALLY happy. Forget the ones you feel "obligated" to sew. You have enough responsibility in your life. Take Care -

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  2. Sarah you are an amazing mummy, take care of yourself xxx

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  3. Just wanted to wish you and your family well through this hard time xxx

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  4. Oh I'm so glad I have found your blog. The internet is quite magical that way. I am a sewing mom in America and also the mom of a 9 year old blind son. Wishing you the best and your family.

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  5. Thanks to you all for your amazing comments.
    Sascha - wow!!! Just checking out your blog now - and wow some more! Rocco looks amazing :-)Off to email you posthaste. xxx

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I always love hearing from you!
Love Sarah